Sunday, May 31, 2009

APS awareness month

Dear sisters,

In June it is APS awareness month.

APS is an abbreviation for Antiphospholipid Antibody Syndrome. APS is also called APLS or APLA in the United States and Hughes Syndrome or Sticky Blood in the UK.

APS is an auto immune disease associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness."

As you know I was diagnosed with this cheerful disease 6 years ago. There is still too little known about this disease, so I am posting two videos about it to help get the word out.


1 comment:

Mireille said...

Ik dacht dat je alleen 'trombose' had. Verdorie, Claire, jij krijgt het ook wel allemaal voor je kiezen. Liefs